UK Boy Diagnosed With Rare Muscular Dystrophy, Parents Are Raising Funds Now


Rory Bentley, now four, was just 18 months old when he was diagnosed with muscular dystrophy. His parents suspected something was wrong when they saw him struggling to walk compared to children his age.

Speaking to the Liverpool Echo, father John Bentley, 38, and mother Kerry Bentley, 38, a resident of Port Sunlight, UK, said they realized Rory’s legs would be fine below him when he would walk and despite minimal physical activity he was very tired. .

The couple first consulted several medical professionals, but no one could tell them the reason.

The family then consulted a private doctor in London who carried out DNA tests in which it was discovered that Rory suffered from muscular dystrophy. It took them about a year to figure out the reason.

Last year they went to Alder Hey Children’s Hospital in Liverpool, UK where they received information about the charity Muscular Dystrophy UK who helped and supported them with all the details or information required and also guided them on what to do or who to talk to. regarding the same.

John says the charity has also helped them connect with other families and people with muscular dystrophy, as the disease is a rare disease and there are many varieties.

John and his wife Kerry also mentioned that it was easier for them to recognize the symptoms because they had another child, Thomas, a year before Rory. Thus, they were able to compare the experiences of the two.

The couple are currently raising money for the disease Muscular Dystrophy in partnership with the charity Muscular Dystrophy UK. For this, John is about to take a skydive that requires a minimum of £400, or Rs 40,327.93, in donations.

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